...chronicling my mother's battle to live with liver disease and raising awareness of hepatic encephalopathy, together.

Thursday, February 21, 2013

No neuro today :/

Mom has been gagging and vomiting bile all day. Had to reschedule the neuro appointment, again. They threatened her that if she doesn't show next time, they will refuse to see her. I'm gonna have to set them straight on that, because it wasn't her choice to cancel the last several time. It was her jerk doctor who refused to do his job and get the referral, and that's not on mom. I'm losing patience with folk making my mama feel bad and threatening her with stuff.

Neuro appointment has been moved to the third week in march. That was the soonest they had available. We need an EEG to verify if what she had in the hospital in november were seizures and if they caused any damage. We're also trying to figure out why she has the hard blink, if her babbling is part of HE or not, and coordinate with the neuropsychologist to define or at least estimate the extent of cognitive impairment already caused by HE. From there, we can work with psychologists and neurologists to help mom regain some cognitive function that she's lost. It's called cognitive rehabilitation. She'll never be the same person she was, and she'll never be as functional as she once was - no more solving mysteries for her - but I hold out hope that she'll be able to make informed decisions easier and have a clear understanding of them. I also hope she'll feel (and be) more independent and not be tricked or scared so easily (especially in reference to those aforementioned folk who like to threaten, harass, and scare my mom with their lies).

I'm feeling a bit better and getting some of the gross out. Which is good, because I'm off to find some ginger tea for mom. Seems to be the only thing that helps settle her stomach.

No comments:

Post a Comment