This update will be FAR too short, as there is a lot going on, but I wanted to put this up here. The finer points-
~Mom's new liver doc essentially says the opposite of everything we've been doing (except for the salt limitation), so we'll see how that turns out. He also changed some of her meds, but it hasn't been long enough to see if it works well.
~Mom tried a new pain med that did NOT go well - she was affected for days and fell onto the tub wall and broke the two ribs she broke before. She's in pain and it hurts to breath or bend over, but x-rays show no punctured organs and there's not much to do but rest.
~Heptatic encephalopathy is ignored and not paid the attention it deserves. This disease ruins lives and has been around since alcohol, yet nobody has heard of it. Thus, a documentary is born. See the trailer HERE. We aren't in it, but I'm contacting the producer and it's possible our story will get heard anyway. I would LOVE to go to the opening of this, but I don't have the funds to go to LV and it might be closed to medical professionals. Chances are they would be the ones being educated and wouldn't be able to help me anyway, but there's a part of me that would like to see the looks on their faces when they realize that people with HE aren't mean just to be jerks, though they do have limited control over their symptoms and total control of their behavior when in their right mind.
~Our primary caregiver is out for this month, but we have a perfect substitute and Mom is being very well taken care of by a woman who can differentiate between disease and person, and also cooks up some mad yummy food without salt. She's great with Mom and has the patience of an angel, yet the sarcasm that entertains me so. Marvelous.
That is all; I have to go to bed. I have to keep searching for jobs this week. I had a job for a minute and lost it, so it's back on the hunt. At least that time did afford me to be able to put more money in the caregiver account. Please remember that we're selling stuff on the sites at the top of this page to raise money for caregiving, and checking out my Fibered Life's facebook page will also lead you to the yardsellr page, on which I'm selling cheaper stuff for the same reason. Tell your friends. Maybe they would be interested. We need to keep the money rolling if we want to keep the caregivers coming! Thank you!
