...chronicling my mother's battle to live with liver disease and raising awareness of hepatic encephalopathy, together.

Thursday, July 1, 2010

Changes come fast.....

Still not a clear understanding of the goings on at my house when I am not there, but here's what I've gleaned and seems to be a consensus amongst various people involved:
~ Mom has been booted from Hospice. She no longer qualifies, perhaps because she wants to fight and perhaps because she is not expected to die within six months.

~ Whomever came to the house and claimed to be animal control was not and scared Mom for some unknown purpose. Still waiting on a call back from the officer on duty in the area during this supposed visit, but animal control maintains that they do, in fact, leave information and case numbers, and that they do not, in fact, require you to put your dog down under these circumstances and that they did not send anyone to the house yesterday. Way to scare a sick woman. I hope whoever did it is proud of themselves for what they've accomplished.
~ No caregiver at this time as we cannot afford it and my brother has changed his mind about paying for someone to watch her. Thus, we will attempt to do this between the two of us, but honestly, I see that becoming the one of me once again very soon.

What I understand that Mom does not:
~ Mom believes that a social worker from APS (from her OD two weeks ago) will return and take her to a place she does not wish to be (i.e. a hospital/convalescent home/etc) if the house is not spic and span in a few weeks. A social worker did come out after her OD, and she will likely follow-up, but she had stated that the claim from the tipline was invalid and that she was trying to help Mom. She was supposed to send info on those lifeline gadgets, such that when Mom falls, she presses a button for help. Have not seen that info yet, but these things take time. I don't think this woman would send Mom anywhere without a very good reason and there is none if she has her mental faculties.
~ Mom was told that I cancelled her MediCAL insurance and that it was the cause of her being discontinued services from Hospice. This is far from true. She has never had MediCAL and I have not had a chance to complete the application. I was waiting for the social worker, who said she would help me with the packet, and then failed to do so and told me to apply by myself over the phone.
~ Mom is convinced that her primary care doctor does not wish to be her doctor anymore. What actually happened is that she tried to make an appointment to see him to get refills on her medications that Hospice took away (which they should have returned, so I have to look into this if they threw away money) and he was overbooked, so they made an appointment with another doctor that she sees often in lieu of her PCP.

I honestly don't understand the hostility I tend to receive with this situation. I have done everything I can to take care of her and to get her to want to be better. Unfortunately, there are negative influences in the world who really ought to learn to stay out of a mess instead of making it worse. We're already stretched; please don't pull harder. If people want to help, I am not above it. I cannot do this on my own. People who want nothing but to complain about the way things are done or what's being done about/to/with Mom only cause conflict and negative feelings and should keep their mean-spirited ideas in their own heads. Thank you.

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